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Raising money for equipment for my son who has quadra-spastic cerebral palsey. Were trying to get enough to get an Ipad and the apps necessary for him to use as a commucation device amongst other therapy equipment.
http://goo.gl/2F1NO
Check out his Facebook page to see more about him
http://www.facebook.com/pages/Finlan...5771219?ref=ts
Help out if you all can.
Thanks for looking.
Jamie
I don't have much but I donated to the site and to your SuperDude just now. Come on peeps every little bit helps. Lets get him a Ipad! Go to his site he is a SUPERDUDE and deserves it.
Jamie, could you explain "the Terms of Service Agreement" in a nut shell please? It is a one time payment correct? Meaning it doesn't come out again some time down the road unless you opt out yourself? So it takes whatever you donate plus fees for your area?
Thanks
Its a one time donation with Paypal fees as they apply to your area. We cover the apps fees out of the donation.
Thanks for the help and keep an eye out on Fins page with updates and photos:)
Thanks, Awesome little guy. Love his page. Donation is going in. Hope he makes his goal!!!
i bet if you had a color sale he would have a pimp ipad and more. look into bee venom therapy . good luck and bummer for the supadood .
I doubt it:) Besides i dont really have anythig but dregs left.Quote:
Originally Posted by NUBBLET
The bee venom therapy sounds interesting ill check it.
Thanks
sux
I personally loved that emerald
Maybe a little rep for the ones who donate?
Good idea. Done, as soon as I figure how to do it! Lol
we wish you guys the best! i hope moving this to the front board will attract a little more attention, i know you are beloved by many here. be strong!
Good luck with the fundraising, you're about halfway there. Sent in a donation, hope it helps!
You all rock so much! Even though ive been out of the loop i love the tighnest of this community:) Weve got enough for the device now! Yay, next were working toward the apps. Can any of ya'll tell me how to give rep points?
Take care,
Jamie and Fin
On the upper right side of each reply, across from your name there is a little box next to the post #. the box looks like it has a A or R in it. It is to the left of the yellow and red box.
Click the A or R box up there in whomever"s post you would like to give rep to in your thread.
Hope that helps.
Stoked he made his goal so far. Hope he gets all the apps he needs.
I've got a 64-gig Wifi-only iPad 1 that's yours if you want it. PM me.
Loyd
Acme sent me a free sample set of color when they came out as they did for grips of forum members .
I am making a nice marble , most likely a fume airtrap "pinecone" (ive never got a good name but they in a way resemble a pinecone) . This marble will be made tonight on Stickam.com then selling said marble or donating it to Acme to auction off which ever way it gets done . to find me stickam.com/nubblet if im not live check my friends as i will be in someones room. However I will most likely do a live recording of it also.
I hope this helps get him a good app or dipped cone , hell ill shoot for both
I will bump this thread when im ready to start if I remember.
Nubblet that rules! Were having a fundraiser in July and one in the fall for Fins Hippatherapy (horseback riding) and various other equipment, and were looking for neat stuff to raffle :)
Loyd, Thanks for the offer your so kind. We ordered the Ipad already from apple, we wanted to get the brand new warrenty and such.
Plus theyre going to etch his name on the back for him:)
Any suggestions for accessories? Fin has real high muscle tone so when he reaches for things theres a lot of force. We need to find a stand and case thats durable.
Also im donating all album sales to Finny right now.
http://jamiepopsvaneffen.bandcamp.com/
http://www.stickam.com/nubblet
im going to record live in few min
ok done i will get in touch or pm me ur address and i will send it out. lets get this dude some shit well at least the 5 bucks worth this will bring.
Loyd, how much are you asking for it? We may want another he can leave at school.
posted vid to fb hope it draws some interest
Free. Just give me an address and it's yours.Quote:
Originally Posted by Acme Glassworks
Humongous thanks to Nubblet for donating time and a marble for Fins fundraising. And to Loydb for donating an Ipad to Fin to share at school with his fellow students and therapists. Schools are so ridiculously under funded particularly special needs programs, this means so much to our family and will mean so much to his school.
Please rep them:)
And thanks to everybody whos donated to the fund in general. People out there gripe that theres no good in the world but i believe they should turn off the television for a bit and look around around. Theres amazing folks like these people all around.
Keep on being rock stars everybody.
Much love,
Jamie and Fin
Im glad to do it , packin mib up should be out tomorrow .
I hope it helps bring a grin .
ok i was slow but it went out today . they said tuesday at latest.
this is awesome! my kid is the same CP and epilepsy among other things how old is you boy? mine is 5...but these pix are from his 3rd bday lol just noticed that..
http://i47.photobucket.com/albums/f1...codybear-1.jpg
http://i47.photobucket.com/albums/f1..._5952495_n.jpg
Awesome Hippi, How sweet he has ALL kinds of ticket doe. Gonna buy all kids of cool stuff!!:) Beautiful kids guys
Peace
jaime hit me up. i have a store in ypsi now and we blow glass on the sidewalk about every other weekend.would be more than happy to make a piece to raffle off and also put out a donation bucket.
Hippi, what a cutey:) Fin will be five in July. What kind of seizures? Fin has partial mild and used to have hundreds a day. But he started the ketogenic diet almost three years ago and we saw an immediate reduction to one to three a day depending on the day. If you want to get in touch to share info my email is acmegw@hotmail.com.
Nubblet thanks we will keep an eye out!
Janky I feel like a tool that I haven't checked your shop out yet. Are you there most weekdays after two?
i'm in and out.i can be there most days if i know your coming.wednsday and thurdays are really good days.just let me know when and i'll be there.
we were gonna do that diet but we had the vegas nerve stimulator put it..he used to have drop seisures mioclonic seizures...when he was younger it was infintile spasms.. it was hell waiting and trying different meds till they got it right..now he doent have to many like u said depends on the day.. but ya ill save your email.. my email is hippiglass@hotmail.com
We finally had our fundraiser last month. Thanks to everyone who donated and happy new year to all. I have a bunch of color to get rid of (last of the Acme stuff) to get rid of to raise loot for an eyegaze device for Fin. Theres around thirty or so pounds of not necessarily to finest quality but will be cheap glass if anyone is interested.
Also heres a link to our current online fundraiser. http://goo.gl/W7HLY
Thanks again everybody,
Fin and Jamie
Attachment 35935
Let's see how fast we can raise the $2,000.00 needed. If everyone does just a few bucks, I'm sure we could have it done in no time :)
Fundraiser Link
Tom
Good to know that people will always keep trying. Fin seems lucky to have a dad like you.
What an awesome little dude, hopefully my little bit helps. Any chance you could post a video of him using the eyegaze device once you meet your goal? I'd love to see Fin and how he uses it. If not I totally understand, good luck with your fundraiser.
Definitely will post vid:) Thanks again to everyone! This community rocks.
Please share fundraiser link:) Thanks
Fin loves blues music (music in general, except country) so we recorded a track for fundraising. Keep an ear out for the b-side Finman Boogie.
http://jamiepopsvaneffen.bandcamp.co...k/finman-blues
Attachment 75426Attachment 75427Update on Fin. Hes doing great and now has a little brother:)
Hope everything is good for everyone. And, whats new in the glass world?