posted vid to fb hope it draws some interest
Humongous thanks to Nubblet for donating time and a marble for Fins fundraising. And to Loydb for donating an Ipad to Fin to share at school with his fellow students and therapists. Schools are so ridiculously under funded particularly special needs programs, this means so much to our family and will mean so much to his school.
Please rep them
And thanks to everybody whos donated to the fund in general. People out there gripe that theres no good in the world but i believe they should turn off the television for a bit and look around around. Theres amazing folks like these people all around.
Keep on being rock stars everybody.
Much love,
Jamie and Fin
Im glad to do it , packin mib up should be out tomorrow .
I hope it helps bring a grin .
ok i was slow but it went out today . they said tuesday at latest.
this is awesome! my kid is the same CP and epilepsy among other things how old is you boy? mine is 5...but these pix are from his 3rd bday lol just noticed that..
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Who are you to judge the life i live? i know im not perfect and i dont live to be but before you start pointing fingers, make sure your hands are clean--Bob Marley
www.stickam.com/hippiglass
jaime hit me up. i have a store in ypsi now and we blow glass on the sidewalk about every other weekend.would be more than happy to make a piece to raffle off and also put out a donation bucket.
The artist formerly known as Puff Danny
Hippi, what a cuteyFin will be five in July. What kind of seizures? Fin has partial mild and used to have hundreds a day. But he started the ketogenic diet almost three years ago and we saw an immediate reduction to one to three a day depending on the day. If you want to get in touch to share info my email is acmegw@hotmail.com.
Nubblet thanks we will keep an eye out!
Janky I feel like a tool that I haven't checked your shop out yet. Are you there most weekdays after two?
i'm in and out.i can be there most days if i know your coming.wednsday and thurdays are really good days.just let me know when and i'll be there.
The artist formerly known as Puff Danny
we were gonna do that diet but we had the vegas nerve stimulator put it..he used to have drop seisures mioclonic seizures...when he was younger it was infintile spasms.. it was hell waiting and trying different meds till they got it right..now he doent have to many like u said depends on the day.. but ya ill save your email.. my email is hippiglass@hotmail.com
Who are you to judge the life i live? i know im not perfect and i dont live to be but before you start pointing fingers, make sure your hands are clean--Bob Marley
www.stickam.com/hippiglass
We finally had our fundraiser last month. Thanks to everyone who donated and happy new year to all. I have a bunch of color to get rid of (last of the Acme stuff) to get rid of to raise loot for an eyegaze device for Fin. Theres around thirty or so pounds of not necessarily to finest quality but will be cheap glass if anyone is interested.
Also heres a link to our current online fundraiser. http://goo.gl/W7HLY
Thanks again everybody,
Fin and Jamie
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Let's see how fast we can raise the $2,000.00 needed. If everyone does just a few bucks, I'm sure we could have it done in no time
Fundraiser Link
Tom
Good to know that people will always keep trying. Fin seems lucky to have a dad like you.
What an awesome little dude, hopefully my little bit helps. Any chance you could post a video of him using the eyegaze device once you meet your goal? I'd love to see Fin and how he uses it. If not I totally understand, good luck with your fundraiser.
- J Frost
Definitely will post vidThanks again to everyone! This community rocks.
Please share fundraiser linkThanks
Fin loves blues music (music in general, except country) so we recorded a track for fundraising. Keep an ear out for the b-side Finman Boogie.
http://jamiepopsvaneffen.bandcamp.co...k/finman-blues
Hope everything is good for everyone. And, whats new in the glass world?
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